MS Australia is the national peak body for multiple sclerosis (MS) research and advocacy. Although MS impacts people differently, there are common, fundamental issues for people affected by the disease. Our key focus is to provide the best outcomes for people living with MS, and to oversee our research program to better treat, prevent and ultimately find a cure for MS.
Through advocacy, MS Australia aims to influence government and other key decision-makers to enact sustained and systemic policy change, particularly related to research funding, health, disability and aged care.
MS Australia advocates to government agencies and other regulatory bodies, on behalf of our four state/territory MS member organisations, to represent the over 25,600 people in Australia diagnosed with the disease, their carers and the broader MS community.
people living with MS represented
MS Australia’s overall aim is to supercharge the MS research agenda and seek vital funding for our research activities, to better treat, prevent and find a cure for MS.
We advocate for an increased focus on research and better treatments for people living with MS. Thanks to our advocacy work, there are now 15 disease-modifying treatments for MS available on the Pharmaceutical Benefits Scheme, allowing affordable access to medications.
MS Australia’s national research coordination, education and advocacy work includes funding grants and calls for specific programs, research into progressive MS, collaborations and submissions to government. We work with government, our funding and corporate partners, and the national and international research community, to initiate and explore opportunities for major collaborative research platforms and investigator-led research projects. We aim to empower MS researchers and strive to ensure that research findings and evidence are translated into better outcomes for people with MS.
The advances made in MS research over the past decades have enabled the opportunity to slow disease progression and accelerated the possibility of a cure.
MS Australia’s national advocacy work is also proudly tied to social justice, equity, fairness and wellbeing for people with MS. We seek to empower people, carers, friends and families affected by MS to live as well as possible. We strive for equitable access to support programs, to combat discrimination against people living with disability because of their MS and to ensure people ageing with MS receive equitable support.
Other aims include:
MS Australia seeks to bring about sustained, systemic change that will lead to more effective management of MS and ultimately a cure; and to enable people with MS to better manage their symptoms, enhancing quality of life, health and wellbeing.
MS Australia makes submissions (view our submissions here) to relevant public consultations and inquiries from a range of sources including:
MS Australia liaises with government and many state-based funding bodies, to advocate for an increased focus on research and better treatments for people with MS, including:
MS Australia also works closely with the Parliamentary Friends of MS Group and collaborates with various global strategic alliances, memberships and/or endorsements, on research advocacy including:
The MS Australia National Advocates Program links to the work of the state/territory MS member organisations, special interest groups and individuals through a network of volunteer Advocates, who lobby and advocate for the MS community, helping to raise awareness of MS and its impact. The National Advocates support the work of MS Australia including adding to the lobbying of Federal Government through regular meetings with local members of Parliament.
Our National Advocates team encompass a combined total of over 300 years’ experience of living with MS (total years since diagnosis), with an enormous breadth, depth and variety in their personal circumstances and life with MS, which we draw upon in advancing the advocacy work of MS Australia.