The Australian MS Longitudinal Study (AMSLS) research platform is available for researchers, MS societies or other stakeholders who can benefit from this resource. The AMSLS study can provide existing de-identified data and assist in collecting new data.
Scroll down for more information on data and survey requests and current AMSLS collaborative projects.
There are two main types of data:
To apply to access the existing AMSLS data:
The AMSLS can include a number of questions to AMSLS surveys, or can run standalone surveys for you. To apply to have your questions included in an AMSLS survey:
|Collaborator(s)||Institution||Area of focus||Project description|
|Associate Professor Pieter van Dijk
Associate Professor Andrea Kirk-Brown
|Monash University||Employment||Workplace wellbeing: Keeping those with MS happy in the workforce including looking at the interplay between disclosure of MS at work, support at work, and intention to quit.|
|Dr Claudia Marck||University of Melbourne||Modifiable Lifestyle Factors||Maximising healthy lifestyle decisions with the challenges of MS: Supporting diet, exercise, smoking and alcohol choices to optimise well-being.|
|Dr Yvonne Learmonth||Murdoch University||Physical Activity||Physical activity: Does it matter whether you live in a regional or remote area?|
|Dr Cynthia Honan||University of Tasmania||Sleep||Maximising sleep: Examining factors that most influence sleep and assessing the impact on quality of life and daily functioning.|
|Professor Andrew Palmer||Menzies Institute for Medical Research||Economic Impact||Health economic impact of MS: Examining the direct and indirect costs associated with MS to individuals and Australia in general.|
|Belinda Bardsley (President MS Nurses Australia), Sue Shapland (MS Societies National Services Leadership Group)||MS Australia||MS Nurses||Examining ways to maximise the availability and health care provided by MS Nurses|
|Dr Lisa Grech||Swinburne University of Technology||Feelings of depression||Examining whether people with MS are appropriately treated for depression and whether anti-depressants potentially have a positive effect on the progression of disease.|