'Life with MS'
World MS Day this year is officially marked on Wednesday 31 May, 2017. The theme for World MS Day in 2017 is #LifewithMS.
A day to celebrate global solidarity and hope for the future.
MSIF chose one of our very own MSA National Advocates, Mike, to feature in this year's campaign. Out of all the people nominated to take part, he is one of only 3 selected from around the world, and we aren’t surprised. His strategy, “Any two of three,” is a great tip to manage fatigue!
He shares his MS story, and also has some other great tips like the last one he mentions, that we really love, "Don't worry too much about the things you have to say 'no' to." Wise words for anyone!
Erin was first diagnosed at 21, although had experienced early onset MS since she was 18. In the years since, she has achieved a lot, both professional and personal, including becoming one of our MSA National Advocates. She has learnt some amazing tips and tricks she is happy to share, some serious, some not so serious, all hopefully very helpful for people with MS
A writer, director, teacher, and a young person with MS, Astrid recommends “educating yourself” and “taking active control, day to day.” She became a National Advocate for MS Australia in March 2015 – the same time she identified herself as LadywithMS.
Sonia is a fun-loving young woman who has had MS for 14 and a half years. Sonia shares her big challenges including mobility, employment, insomnia and even having to learn to be left-handed because her "MS just decided" she didn't need her right hand anymore. She also shares a plethora of tips and tricks for #lifewithMS.
Teisha has had MS for 20 years now, it has impacted every element of her life, but she says "but that's not necessarily all a negative." It has also made her pro-active and flexible so that everything she does is "about my health and wellbeing." She shares tips on #lifewithMS and everything from travel, her career, her social life, even shopping!
*** ONE MORE VIDEO TO COME, WATCH THIS SPACE ***
Australian Parliament has recognised World MS Day 2017
World MS Day events
Join in the World MS Day 2017 conversation:
- like us on MS Australia’s Facebook page and add your comments
- look for us on Twitter @MS_Australia
- share your own tips for living better with MS using #LifewithMS, for more information visit: https://worldmsday.org/about/
World MS Day 2016
The international theme for World MS Day 2016 was ‘independence’. MS organisations all over the world celebrated all the ways that people affected by MS maintain independence and get on with their lives. This may be thanks to support from family and friends, adjustments and flexibility in the home and workplace, support from MS organisations, effective treatment and lifestyle choices, a steady income, or even just a shift in attitude.
MS in the workplace
This World MS Day we shone a light on MS in the workplace. Most people are diagnosed with MS in the prime of their working lives, when they have valuable experience and expertise to contribute to the workplace, and for many people, having a supportive employer is what enables them to remain in employment.
A global report from the MS International Federation has revealed a significant number of people with MS are leaving employment earlier than they need to; highlighting the need for employers to put reasonable adjustments in place to help people continue working. The report, based on data from a survey of over 12,200 people affected by MS, shows that 43% of people with MS who weren’t working had left employment within three years of diagnosis. This rose to 70% within 10 years of being diagnosed.
We hosted a national employment summit in Canberra on World MS Day to provide key recommendations for employers, policy makers and researchers. A number of people with MS came together to share their personal experiences of living and working with MS including MSA Advocate Mike Welsh who attended alongside a representative of his employer, ANZ Bank.