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MS Australia thanks carers – part two – some personal reflections

carers
25 October 2016

Last week, MS Australia marked National Carers Week (16-22 October 2016) in a news piece about the important carer role, government changes that will likely impact on carers and the importance of advocacy work in this area.

This week, we continue our focus on carers through more personal stories. A member of the MS community shared the following story with us:

I always feel a little conflicted being called a ‘carer’, I guess outside my house nobody (family included) would ever even consider me being in that role, so with that being said for me one of the top concerns would be the role of the ‘Invisible Carer’ - many people don’t understand the challenges for people with invisible symptoms, the carers for these people are just as misunderstood. As much as I can’t speak for anyone else in this situation, I often feel like a pretend carer as I ride the waves of the ups and downs of MS, I go through good times when symptoms are well managed and then crash with the onset of a relapse.

After having some bad experiences with healthcare professionals at emergency departments, I would also say that the medical knowledge of carers (for the situation they are day in and day out managing) and the patient history they provide, should always be taken into consideration. As you would know rural hospitals can provide their own challenges and the inexperience of most doctors sent our way brings many comments such as “I don’t know much about MS” - I now have a folder for just these types of situations!

This time last year, two MS Australia ‘Uninterrupted’ bloggers posted about carers, and Carers Week has been a good time to reflect on the power of these stories. The first is by a person with MS whose husband is her carer…

In my time spent with the MS community I have met and also heard of carers of all ages. They range in age of 9 (yep! Crazy I know!) into their 70’s, many go unsupported and unpaid, like my husband they do it because they care and want to make the life easier for those they love. 

For the full story visit:

http://www.uninterrupted.org.au/blogs/my-husband-my-carer

The second blog reflects on the change from caring, to being cared for…

I’ve always been an independent person.  A carer rather than someone who is comfortable accepting care from others. It’s been humbling at times to discover how many lovely people there are around me, just waiting for me to take down the “one way” signs and allow them to be part of my support team as I move through life with MS.

For the full story visit:

http://www.uninterrupted.org.au/blogs/physician-heal-thyself

It’s not too late to show your support and thank the 2.8 million+ unpaid carers in Australia, with a message via the Carers Australia National Carers Week website.