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Talking to people with MS about the NDIS

22 October 2015

Nearly 400 people living with multiple sclerosis are recipients of an NDIS plan and have given us positive feedback in terms of the outcomes for themselves, their family and for the way they live life.

Over the last 2 years the focus of the NDIS has been very much on getting people with a disability into the scheme and getting plans in place with individualised personalised funded supports.

Our own NDIS project team has taken a very proactive approach in the trial sites to engage with people living with MS. We wanted to share with you the result of the conversations they’ve had with approximately 1,000 people who are currently registered with an MS nurse, under 65 years of age and living in the trial sites.

The conversations have fallen into 4 categories depending on the level of information and understanding the person has about the scheme:

People with little or no knowledge about the scheme

The initial conversation has revolved around the basic workings of the scheme, how it’s helping other people with MS; how it may assist them and how to go about completing the access and eligibility process.

People who are aware of the scheme but don’t think it relates to them

People often don’t associate themselves with ‘having a disability’ or think there are people out there who need the support more than them. The conversation here has therefore centered around discussions about how their MS is affecting their daily life and how the NDIS can assist them to have improved quality of life.

People who have attempted to access the scheme but have met a roadblock

Conversations are around the process. Frequently they are assisted by an MS organisation to complete the paperwork with regular follow-up’s to determine their progress through the process.

People who are well informed about the scheme

These people have either made a decision that they are not in need of services at present or they have already become a participant. Discussion with participants identifies the types of supports/services in places; the outcomes they are achieving, and the level of satisfaction with the scheme

We will continue to speak to people with MS in the trial sites, and this will expand as the scheme rolls out, especially in Victoria, NSW and Qld where the timing and regions for full scheme roll out have been announced.

To find out more, and to give us feedback, please visit the sites suggested at the beginning of this blog.