Back to top

WORLD MS DAY 2019:

World MS Day is officially marked on 30 May every year.  In 2019, World MS Day was on Wednesday 30 May. The themes each year are chosen by MSIF (Multiple Sclerosis International Federation) in collaboration with its member organisations including MS Australia. 

From MSIF's website:

World MS Day 2019 campaign announced!

 

Raising awareness of the invisible symptoms and unseen impact of MS.
 

World MS Day 2019 will take place on 30th May. The 2019 campaign will be called ‘My Invisible MS’ (#MyInvisibleMS) and the theme is Visibility.
 
My Invisible MS will raise awareness of the invisible symptoms of MS and the unseen impact of MS on quality of life.
 
The campaign will give a voice to everyone affected by MS to share their invisible MS symptoms and express what you want others to know and understand about MS, in order to challenge common misconceptions and help people understand how to provide the right support.
 
There are many ways to get involved in World MS Day and use and adapt the My Invisible MS campaign. You can take part in the campaign online and on social media, hold an event to bring people together for World MS Day, lobby your decision makers to make positive changes for people affected by MS…there are so many possibilities!
 
We’ll be sharing more information and resources in Early 2019. Watch this space!

 


2018 - 'Research: #BringingUsCloser' theme

From MSIF's website:
Research is bringing us closer to ending MS. To succeed, we need to work together as a global MS community to find ways to improve life with MS now and end MS forever."

The #bringinguscloser campaign was about connecting people affected by MS with those involved in MS research, including scientists, students, nurses, fundraisers, volunteers, and more. It was a chance to come together to celebrate what we've achieved in MS research so far, and share our hopes for the future.

 



 

Spearheading the campaign was a clever animation on how new MS treatments are developed. Watch and share it with colleagues, family and friends!
 

 

We were delighted that the Hon Greg Hunt MP on behalf of the Government committed on World Multiple Sclerosis (MS) Day to working with both MS Australia and MS Research Australia over the next 6 months, to develop a 10-year plan to implement our 'Roadmap to Defeat Multiple Sclerosis in Australia'. We were equally delighted to receive bi-partisan support for this initiative from the Hon Catherine King MP, Shadow Minister for Health.
 
Watch our wrap-up of the World MS Day 2018 Event to launch the "Roadmap to Defeat Multiple Sclerosis in Australia" here:
 
 

Read our news item regarding our World MS Day activities for 2018 here.

 

Australian Parliament recognises World MS Day 2017 with Hansard Motion

On 10 May 2018, the Australian Parliament formally recognised World MS Day 2018 and the Research theme through a motion passed by the Senate (refer page 57), which also acknowledged the condition; the importance of early diagnosis, early and managed treatment, a brain-healthy lifestyle; and the need to increase the investment in research and more.
 


To read about research in Australia, visit the MS Research Australia website: https://msra.org.au/You can also help raise funds for MS research via the Kiss Goodbye to MS campaign.
 



2017 - 'Life with MS' theme

The theme for World MS Day in 2017 was #LifewithMS. A day to celebrate global solidarity and hope for the future.

 

 

 



MSIF chose one of our very own MSA National Advocates, Mike, to feature in this year's campaign.  Out of all the people nominated to take part, he was one of only 3 selected from around the world, and we weren’t surprised. His strategy, “Any two of three,” is a great tip to manage fatigue!

He shares his MS story, and also has some other great tips like the last one he mentions, that we really love, "Don't worry too much about the things you have to say 'no' to." Wise words for anyone!

 

 

 

Tim Ferguson is a beloved Australian comedian, writer, director and performer. He shares his tips for people with MS as someone who knows, having been first diagnosed when he was 19. 
This video is supported by Biogen.
 

 

In response to this year's theme, MS Australia has also produced videos featuring five Australian woman talking about the challenges of life with MS and sharing ideas for managing these challenges.
We are releasing these videos, one by one, in the weeks leading up to World MS Day, so keep an eye on this web-site and MSA’s Facebook site, https://www.facebook.com/MSAustralia/
 
You may have solutions to challenges like coping with stress and emotions, balance problems, or dealing with heat. A simple tip that works for you could make a huge difference to someone else!
 


Erin was first diagnosed at 21, although had experienced early onset MS since she was 18. In the years since, she has achieved a lot, both professional and personal, including becoming one of our MSA National Advocates. She has learnt some amazing tips and tricks she is happy to share, some serious, some not so serious, all hopefully very helpful for people with MS

 

 

 

 A writer, director, teacher, and a young person with MS, Astrid recommends “educating yourself” and “taking active control, day to day.” She became a National Advocate for MS Australia in March 2015 – the same time she identified herself as LadywithMS.
 

 

 

Sonia is a fun-loving young woman who has had MS for 14 and a half years. Sonia shares her big challenges including mobility, employment, insomnia and even having to learn to be left-handed because her "MS just decided" she didn't need her right hand anymore. She also shares a plethora of tips and tricks for #lifewithMS.

 

 

 

Connie is married with 2 kids, and is living with MS. In this short video, she shares her experience of MS’s symptoms, and her tips for #lifewithMS, big and small; "listening to your body", "having a nap," "staying cool,"  and more.
 
 


 

Teisha has had MS for 20 years now, it has impacted every element of her life, but she says "but that's not necessarily all a negative." It has also made her pro-active and flexible so that everything she does is "about my health and wellbeing." She shares tips on #lifewithMS and everything from travel, her career, her social life, even shopping!

 

 

 

Australian Parliament has recognised World MS Day 2017 

The 45th Australian Parliament recognised World MS Day 2017 through a motion passed by the Senate on 10 May.
 
hansard
 
 
Senate Hansard for 10 May reads:
 
That the Senate-
(a) Notes that:
i. World MS Day takes place on Wednesday 31 May with the theme “Life with MS”, and
ii. MS Australia seeks to raise awareness of what life with MS is like
 
(b) Recognises that:
i. You are four times more likely to be diagnosed with MS if you are born in Tasmania compared to the national average and 7 times more likely than if you were born in North Queensland
ii. MS is the most common neurological condition diagnosed in young adults
iii. It is most commonly diagnosed between the ages of 20 and 40, and 75% of people diagnosed are women
iv. There is no known cause or cure
 
(c) Acknowledges the important role of families, friends and carers of people living with MS
 
(d) Confirms the need for continued action to:
i. increase the investment in research to find the cause and a cure for MS and;
ii. improve access to support from the first experience of symptoms, through diagnosis, treatment and ongoing disease management.
 
 

World MS Day events

Take a look at the World MS Day events map and add your event! 
It’s quick and easy and a great way to promote your own World MS Day event.

 

Join in the World MS Day 2017 conversation:

 
 
 
 



 

2016 - 'Independence' theme

The international theme for World MS Day 2016 was ‘independence’. MS organisations all over the world celebrated all the ways that people affected by MS maintain independence and get on with their lives. This may be thanks to support from family and friends, adjustments and flexibility in the home and workplace, support from MS organisations, effective treatment and lifestyle choices, a steady income, or even just a shift in attitude.

 

MS in the workplace

This World MS Day we shone a light on MS in the workplace. Most people are diagnosed with MS in the prime of their working lives, when they have valuable experience and expertise to contribute to the workplace, and for many people, having a supportive employer is what enables them to remain in employment.

 

Global report

A global report from the MS International Federation has revealed a significant number of people with MS are leaving employment earlier than they need to; highlighting the need for employers to put reasonable adjustments in place to help people continue working. The report, based on data from a survey of over 12,200 people affected by MS, shows that 43% of people with MS who weren’t working had left employment within three years of diagnosis. This rose to 70% within 10 years of being diagnosed. 

 

Employment Summit

We hosted a national employment summit in Canberra on World MS Day to provide key recommendations for employers, policy makers and researchers. A number of people with MS came together to share their personal experiences of living and working with MS including MSA Advocate Mike Welsh who attended alongside a representative of his employer, ANZ Bank.