World MS Day is officially marked on 30 May every year. In 2019, World MS Day was on Thursday 30 May. The themes each year are chosen by MSIF (Multiple Sclerosis International Federation) in collaboration with its member organisations including MS Australia.
This Year's 'World MS Day' Media Coverage included:
The power of positivity: Tim Ferguson on the election result and life with MS
The irrepressible Comedian, writer, educator and Doug Anthony Allstar, Tim Ferguson interview with Channel 7 Morning Show's Kylie Gillies and Larry Emdur: https://bit.ly/2YTb6cY
Andrew Giles and Deidre Mackechnie on IndiaLink Radio
Astrid Edwards and Deidre Mackechnie on ABC News Breakfast
National Advocate and writer, Astrid Edwards, along with MSA CEO, Deidre Mackechnie, speaks about Astrid's experiences living with MS with Virginia Trioli and Paul Kennedy on ABC News Breakfast: https://bit.ly/2Xe9k5L
Link, "Australia's National Disability News" feature on World MS Day: https://bit.ly/314PeNR
'Your life doesn't stop when you have MS'
World MS Day sheds light on invisible symptoms #MyInvisibleMS
What no one else sees - The invisible side of living with Multiple Sclerosis
World MS Day focuses on changing the condition’s visibility
Living With Multiple Sclerosis In A Post-Selma Blair World
World MS Day 2019 on Thursday 30 May is an annual global day to raise awareness about multiple sclerosis (MS) and the needs of people living with the condition.
This year’s theme, Visibility aims to (both) spotlight the invisible symptoms of MS (#MyInvisibleMS) and their unseen impact on quality of life; and increase the visibility of MS.
These invisible symptoms will be familiar to many people affected by MS. They include pain, fatigue, visual problems, numbness/tingling, feeling hot and cold, brain fog (cognitive difficulties), depression, continence problems and balance issues/dizziness.
People with MS often hear, “but you look so well!” when in reality, they are experiencing severe invisible or hidden symptoms.
How can you get involved?
Help us get the hashtag #MyInvisibleMS trending on Twitter!
Share one of our Facebook posts: https://www.facebook.com/MSAustralia/
Share one of our tweets on Twitter:
Make your own poster or graphic here to share on social media:
We are also very excited to be launching an invisible symptoms animation on the day, and would love your help sharing it with friends and family!
MSIF have released their WORLD MS DAY 2019 video and we are proud to announce that Ivan, a young man from Australia, has been included in this year's campaign.
Here is our 3-min video featuring Ivan talking about his MS journey and how symptoms affect his life:
And here is the MSIF official 2019 video, featuring six people from around the world who are living with MS:
Watch our social media pages for more news as the day approaches!
MSIF's New Poster Maker
World MS Day 2019 campaign announced!
Raising awareness of the invisible symptoms and unseen impact of MS.
The World MS Day 2019 Toolkit
Besides online and on social media, holding or attending events and lobbying politicians, you can become involved by sharing experiences of invisible symptoms, and using and sharing the World MS Day tools.
The Toolkit (available in English, Spanish, Arabic, French and Portuguese) is ideal for people running community events, with material to display on for example, noticeboards, and shareables for friends/colleagues/family and includes:
- How to get involved guide
- Myth and truth infographics
- ‘What I want you to know about MS…’ graphics
- Invisible symptom posters and graphics
- Headers, banners and shareables for social media and websites
- Logos (World MS Day and #MyInvisibleMS graphics)
As mentioned above, the theme of this year’s campaign is visibility and the hashtag is #MyInvisibleMS. The toolkit materials are designed to help us all spotlight MS and the unseen impact of invisible symptoms this World MS Day.
As other tools are included we will add them here.
MS partner organisations
The state/territory MS organisations run various events in the lead up and on World MS Day itself. Please visit the links below and their social media channels for further details, updated once activities are confirmed.
Additional activities may also be run by our research organisation, MS Research Australia.
#MyInvisibleMS (or #myinvisiblems)
#worldmsday (or #WorldMSDay)
Hashtags in other languages.
- Spanish: #MiEMinvisible
- Arabic: الوجه_الخفي_للتصلب_المتعدد#
- French: #MaSEPinvisible
- Portuguese: #MinhaEMinvisível