The MS Australia Lived Experience Panel (LEEP) provides a formal mechanism to facilitate advice from experts across the MS community and support the work of MS Australia by:

Enhancing the MS Australia advocacy agenda through evidence and advice from the MS community

Ensuring the MS community has a strong voice into MS Australia’s governance, research, policy & advocacy, education & awareness

Terms of Reference: The purpose, structure and processes of the LEEP are outlined in full in the LEEP Terms of Reference which were approved the by MS Australia Board on 31 March 2023

Membership

The MS Australia Lived Experience Expert Panel was established in October 2023. It is made up of 59 people living with MS or carers of people with MS. The Panel brings a wide range of lived experience and expertise to the work of MS Australia.

LEEP Members have professional experience in the disability sector, professional sports, allied health, medicine, nursing, policing, research, government and federal politics.  Members also have personal experience with inter-generational and familial MS, disability including the National Disability Insurance Scheme (NDIS) and aged care services, a wide range of treatments and medications and participation in research. LEEP members are drawn from a diverse range of backgrounds including younger people, older people, culturally and linguistically diverse, parents including single parents, LGBTQI+ and people living in regional and rural locations.  Many LEEP members have previous experience with disability advocacy, speaking publicly about MS, running peer support groups and raising awareness by sharing their MS story on social media.

The LEEP members each bring their unique experience and insight to the advocacy work of MS Australia and ensure that it has a strong lived experience focus.

Applications for LEEP membership are currently closed. The LEEP membership will be reviewed periodically.

If you are interested in more information about the LEEP please contact us at advocacy@msaustralia.org.au

Hannah Woolford

South Australia

Brigitte Sigl

New South Wales

Tayarra Smith

New South Wales

Janine Watson

Queensland

Lynn Ingram

New South Wales

Sienna Sullivan

Victoria

Julie Lonsdale- Light

Queensland

Amanda Grobbelaar

Queensland

Chloe Olsen

Tasmania

Nigel Caswell

Victoria

Brooke McGrath

New South Wales

Jo Beard

Victoria

Vanessa Fanning

Australian Capital Territory

Rowena Auchterlonie

Tasmania

Laura Birchall

Australian Capital Territory

Erin Brady

New South Wales

Mich de Waal

New South Wales

Alexandra Kitching

Temporarily living overseas

Sarah Flaim

Queensland

Kate Casey

Queensland

Jessica Worsley

South Australia

Rachel Fallis

New South Wales

Deanna Renee

victoria

Dr Amanda Kennedy

New South Wales

Susan Hyde

Western Australia

Tessa Colliver

South Australia

Louis Ziras

victoria

Deize Limax

victoria

Tennille Da Costa

victoria

Alex Mckay

QUEENSLAND

Tanya Rountree

queensland

Kylie Ujdur

QUEENSLAND

Rebecca Small

NEW SOUTH WALES

Jody Cypelt

Western Australia

Connie Janiszewski

New South Wales

Rachel Kerr

QUEENSLAND

Lauren Borlace

New South Wales

Sally Irwin

New South Wales

Jodi Martin

New South Wales

Alison Reece

Victoria

Kirrily Careedy

Victoria

Samantha Billington

Queensland

Tracey Bettens

South Australia

Gavin Harper

Western Australia

Steven Koutsodontis

Victoria

Michael Butler

New South Wales

Anne Cooper

Western Australia

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Lived Experience Expert Panel