MS Australia is establishing a Lived Experience Panel (LEEP) to provide expert advice on core areas of interest to MS Australia.

The LEEP will provide a formal mechanism to facilitate advice from experts across the MS community and support the work of MS Australia by:  

Enhancing the MS Australia advocacy agenda through evidence and advice from the MS community

Ensuring the MS community has a strong voice into MS Australia’s governance, research, policy & advocacy, education & awareness

Terms of Reference: The purpose, structure and processes of the LEEP are outlined in full in the LEEP Terms of Reference which were approved the by MS Australia Board on 31 March 2023

membership

MS Australia is now calling for interested and qualified Australians to apply for membership of the LEEP. 

Successful applicants will be selected for their capacity to assist in achieving the purpose of the LEEP and to provide meaningful feedback and input on MS Australia’s policy, research and communications work.  

LEEP members should be able to provide input and advice on at least one of the following areas of expertise or interest to MS Australia: 

  • Person living with MS
  • Younger person living with MS and/or carer for younger person living with MS
  • Older person living with MS including experience of navigating the Australian aged care system
  • Person living with MS who lives in rural, regional or remote Australia
  • Person living with MS who is a member of a vulnerable and/or diverse community, such as the Aboriginal and Torres Strait Islander community, LGBTQI+ community, CALD community and people who are socially and economically disadvantaged
  • Carer for person living with MS including experience navigating carer supports and services 
  • Employment, training and the labour market for people living with MS 
  • Housing and assistive technology 
  • Government services and supports relating to disability including navigating and accessing the National Disability Insurance Scheme and the Disability Support Pension 
  • Government policy processes, with a focus on disability, health and aged care 
  • Understanding of the social and economic barriers facing people living with disability with a focus on people living with MS 
  • Medical research, with a focus on MS 
  • MS treatments and medications 

application form

Applications close Friday 16 June

*Mandatory fields

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Lived Experience Expert Panel