Nigel Caswell wasn’t sure about attending his first multiple sclerosis (MS) conference.
“I was afraid, wondering if I’d see what my future held,” said Nigel, who was diagnosed with MS in 1993.
But the former civil engineer was glad he went because it changed his life.
More than two decades later, the 78-year-old Bentleigh resident received MS Australia’s John Studdy Award for his service to others living with the neurological condition.
Nigel Caswell
Nigel’s volunteer work for the MS community began when he came across an ambassador’s stall at the conference.
“They were recruiting people who were willing to go out into the community and talk about MS. I like public speaking, and I’m a blue sky kind of person. I felt I could help,” he said.
Nigel has been an MS Plus ambassador, and MS Australia advocate for 28 years. He speaks to community groups, schools and other organisations. His advocacy work involves lobbying politicians.
He’s also given time to other causes. In 2013, Nigel received a Medal of the Order of Australia (OAM) for his varied contributions.
“I’m not the sort to let the grass grow under my feet.
“Volunteering has helped me to live with MS and turn something that might seem like bad luck into an advantage.
“I’m sure I get more attention because some people don’t expect someone in a wheelchair to have intelligent remarks to make.”
When Nigel started having health issues, it took years to get an accurate diagnosis. He underwent several unpleasant tests and a complicated operation that didn’t solve the mystery. Five years later, MRI technology provided the answer: progressive MS.
In some ways, the diagnosis was a relief. At least Nigel knew what he was dealing with and could access support and treatment.
After his diagnosis, Nigel was able to continue working as a senior executive at Parks Victoria for several years. He later became a marriage and funeral celebrant.
Nigel and his wife Stevie
Now retired, Nigel enjoys caravan touring with Stevie, his wife. He also likes painting watercolours and spending time with his two sons and four granddaughters.
These days, he gets around in a walker at home and a wheelchair when he goes out. Despite this, he feels lucky.
Being an MS ambassador and donor are two ways Nigel has thanked MS Plus staff for their support.
Now he’s adding something else: a gift in his Will.
“A bequest is a logical extension of my MS ambassador role. It will help keep my work going after I’m gone.
“It’s important to help fund research that will lead to better treatments. The current drugs have unpleasant side effects. It would be great to have better ones available.
“But a cure would be even better.
“It might not be there in time to help me, but if my gift can help others receive a cure, that’s a good thing in my book,” he said.
Fast-track a cure for MS, care until we’re there.
Protect future generations from MS.
Could you be like Nigel and help others with MS? It’s easy to leave a gift in your Will. Even 1% of what is left after taking care of family and friends.
Ask Laura or Rebecca at MS Plus. Call 1800 443 867, email futureplanning@ms.org.au or visit My MS Legacy.
