News

From our CEO

27 November 2024

Rohan Greenland The May 50K

As we enter the rush to the end of 2024, we can briefly reflect on the major developments that are propelling us towards our key goals – pumping funds into world-leading research, vigorously advocating for people living with MS, placing people living with MS at the heart of all we do and improving understanding of MS and the impact it has on family, friends and carers.

Summits have been held, millions of dollars invested in research, our PLATYPUS clinical trials are well advanced and looking to enrol the first participants early in 2025, our new EBV research collaborative platform has just been launched and our ‘What is MS video’ is screening in GP surgeries across the country.

We are also wearing out the shoe leather as we advocate for our policy proposals ahead of the federal election, a 10-year neurological research mission, an MS nurse workforce strategy and a national MS Biobank, among others.

As I write, we are doing our last-minute preparations for our Frontiers in MS Research symposium being held in conjunction with the University of Sydney.

It has a strong focus on prevention as we work with MS Canada and other MS research societies across the world to develop a global partnership that focuses on ultra-early detection and intervention for MS, with the aim of stopping the disease almost before it starts.

Much has been achieved this year thanks to all in the MS community, our donors, and our hard-working Member Organisations – MS Plus, MSWA, MSQ and MS SA/NT, not to mention the Board Directors and staff.

None of our work would be possible without you. And with your support and engagement, we look forward to another high-energy and game-changing year in 2025.

Related News

MS News

Hearing lived experience voices on mental health and MS

8 October 2026

This World Mental Health Day 2026 (10 October), members of our Lived Experience Expert Panel (LEEP) share their experiences of managing mental health while living with MS, including seeking professional support, staying active, connecting with others and adapting to changing circumstances.

LEEP

Julie Lonsdale-Light

29 September 2026

LEEP member, Julie shares her experience of MS diagnosis and how she's learned to manage her health over the years. "Having MS means I am constantly “assessing” my body and listening to how I feel. I try not to do too much and take rest breaks as needed."

MS News

More than 3 million people are now living with MS worldwide

29 September 2026

Latest estimates show that more than 3 million people are living with MS worldwide. The rise is likely influenced by earlier diagnosis, improved care and stronger data collection, highlighting the growing global impact of MS and the need for action.

Read More

Newsletter subscription

  • This field is for validation purposes and should be left unchanged.

From our CEO