MS service availability and pattern of care in the ACT region

Dr Nasser Bagheri

Australian National University

| Better treatments | Social And Applied Research | Incubator | 2019 | Investigator Led Research |
SUPPORT PROJECTS WITH THIS RESEARCH FOCUS

Summary

MS is one of the most common neurological disorders and causes of disability in young people. Due to the high complexity of care that can be involved, there is a need for a detailed description of all the MS resources available and how they are used. Currently, we do not have a good understanding of MS service availability, workforce and pattern of MS carein many local communities in Australia.

Dr Nasser Bagheri’s study will, for the first time, assess all services providing care for people with MS in the ACT region. He will generate new data on the pattern of MS care for people with MS, health professionals and policymakers in the ACT. This work will provide a better understanding of the availability, capacity, accessibility and adequacy of the resources for MS patients, as well as identify gaps in the MS care system in the ACT region.

Dr Nasser Bagheri aims to develop a new local context-based decision-making tool that can be used by people with MS and health professionals for monitoring, reviewing and improving MS care in the ACT region. The aim is to eventually extend this nationally.

Progress to Date

Currently, the study team has obtained ethical approval to conduct the study, recruited a research assistant, performed a systematic review (that has been published) and identified MS care services in the region. The systematic review found that the usefulness of geographic mapping of services to help with access and planning of care in MS is not well understood internationally Presently, interviews with MS care providers are being performed and these are expected to continue for the next few months, in addition to interviews with people living with MS. Unfortunately, restrictions with COVID-19 during 2020 pushed the interviews back, but the study is once again in progress. Following completion of the interviews, work will begin on mapping the care provision for people living with MS in the ACT region.

Publications

  • Hashtarkhani,S; Tabatabaei-Jafari,H; Kiani,B; Furst,MA; Salvador-Carulla, L & Bagheri,N. (2019). Use of geographical information systems in multiple sclerosis research: A systematic scoping review. Mult Scler Rel Dis. https://doi.org/10.1016/j.msard.2021.102909

Updated: 6 April 2021

Updated: 02 January, 2019

Stages of the research process

Fundamental laboratory
Research

Laboratory research that investigates scientific theories behind the possible causes, disease progression, ways to diagnose and better treat MS.

Lab to clinic timeline: 10+ years
Translational
Research

Research that builds on fundamental scientific research to develop new therapies, medical procedures or diagnostics and advances it closer to the clinic.

Lab to clinic timeline: 5+ years
Clinical Studies
and Clinical Trials

Clinical research is the culmination of fundamental and translational research turning those research discoveries into treatments and interventions for people with MS.

Lab to clinic timeline: 1-5 years

Investigator

  • Dr Nasser Bagheri

Co-investigator

  • Professor Luis Salvador-Carulla

Grant Awarded

  • Incubator Grant

Total Funding

  • $25,000

Duration

  • 2 years over 2019 - 2021

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MS service availability and pattern of care in the ACT region