MS is one of the most common neurological disorders and causes of disability in young people. Due to the high complexity of care that can be involved, there is a need for a detailed description of all the MS resources available and how they are used. Currently, we do not have a good understanding of MS service availability, workforce and pattern of MS carein many local communities in Australia.
Dr Nasser Bagheri’s study will, for the first time, assess all services providing care for people with MS in the ACT region. He will generate new data on the pattern of MS care for people with MS, health professionals and policymakers in the ACT. This work will provide a better understanding of the availability, capacity, accessibility and adequacy of the resources for MS patients, as well as identify gaps in the MS care system in the ACT region.
Dr Nasser Bagheri aims to develop a new local context-based decision-making tool that can be used by people with MS and health professionals for monitoring, reviewing and improving MS care in the ACT region. The aim is to eventually extend this nationally.
Currently, the study team has obtained ethical approval to conduct the study, recruited a research assistant, performed a systematic review (that has been published) and identified MS care services in the region. The systematic review found that the usefulness of geographic mapping of services to help with access and planning of care in MS is not well understood internationally Presently, interviews with MS care providers are being performed and these are expected to continue for the next few months, in addition to interviews with people living with MS. Unfortunately, restrictions with COVID-19 during 2020 pushed the interviews back, but the study is once again in progress. Following completion of the interviews, work will begin on mapping the care provision for people living with MS in the ACT region.
Updated: 6 April 2021
Updated: 02 January, 2019
Laboratory research that investigates scientific theories behind the possible causes, disease progression, ways to diagnose and better treat MS.
Research that builds on fundamental scientific research to develop new therapies, medical procedures or diagnostics and advances it closer to the clinic.
Clinical research is the culmination of fundamental and translational research turning those research discoveries into treatments and interventions for people with MS.