Being counted is only the beginning. What will it take to turn stronger evidence into better care for Australians living with neurological conditions?
In this episode of The Raw Nerve, Host Jeremy Henderson explores revised Australian Institute of Health and Welfare (AIHW) data incorporating new evidence on migraine and multiple sclerosis (MS), including MS prevalence research commissioned by MS Australia and undertaken by the Menzies Institute for Medical Research.
The updated reporting estimates that about 4.5 million Australians were living with at least one neurological condition in 2025, while almost 37,800 Australians were living with MS in 2024.
Jeremy is joined by Rohan Greenland, Chair of Neurological Alliance Australia and CEO of MS Australia; Dr Tennille Luker, Head of Research at MS Australia; and Chloe Cifelli, Chair of Migraine Australia. Together, they unpack what the figures reveal—and why recognition must lead to action.
From delayed diagnosis and migraine stigma to specialist shortages, high out-of-pocket costs and fragmented care, the discussion connects national data with everyday experiences. Chloe shares the practical and financial challenges of accessing migraine treatment, including her own powerful lived experience story, while Tennille explains the growing impact of MS and the importance of better-connected data, early intervention and research. Tennille reveals the almost 37,800 Australians with MS figure has increased from 13% in 2021 and by 77% since 2010. She says that MS prevalence is increasing at an accelerated rate which isn’t just population growth: the actual MS prevalence per 100,000 Australians has gone up from 96 to 139.
At the heart of the conversation is Neurological Alliance Australia’s Fair Go for Neuro campaign and its call for a government funded and implemented National Action Plan for Neuro. As Rohan says, “The numbers now justify action, urgent action.” The guests explain why a national response must connect health, disability, aged care, workforce planning and research, with lived experience shaping priorities.
Hear why a united neurological voice matters, what meaningful progress could look like, and how supporting the campaign’s open letter can help build momentum for change.
MS Australia’s Member Organisations provide frontline support for people living with MS and a range of other neurological conditions. For migraine support, visit the Migraine Australia website.
