Cladribine submission to PBAC – February 2018

1 February 2018

Medication Subsidy (PBAC)
Category
Category
year
Year

MS Australia Submissions

17 July 2026

MS Australia’s submission to the National Transport Commission on the Assessing Fitness to Drive Standards, informed by the experiences of LEEP members, recommends that the updated Standards better recognise the variable and fluctuating nature of MS symptoms. The Standards should also support fair, practical and person-centred decision-making; provide clearer guidance for people living with MS, carers, health professionals and licensing authorities; and ensure review processes are responsive to changes in an individual’s circumstances.
Travel and Transport

10 June 2026

MS Australia’s submission on the Draft Revised Whole Journey Guide acknowledges the Guide’s intent and potential value. However, drawing on feedback from our LEEP, we recommend that the Guide be substantially revised to improve clarity, usability and accessibility, including through a shorter structure, a plain-language companion guide, expanded air travel content, and a stronger focus on practical accessibility measures.
Travel and Transport

29 May 2026

MS Australia submission supports strengthening the NDIS but warns the Bill risks reducing rights and flexibility for people with MS. It highlights concerns with stricter eligibility, assessments, informal support assumptions, pricing changes, and decision-making powers. The submission calls for stronger safeguards, consultation, workforce training, and human rights compliance to ensure reforms are person‑centred, evidence‑based, and responsive to complex, fluctuating conditions like MS.

23 April 2026

MS Australia’s submission to the Inquiry into the Integrity of the NDIS highlights widespread risks of fraud and non-compliance, particularly among unregistered providers, leading to harm, reduced supports, and loss of trust for participants. It recommends compulsory provider and worker registration (with limited exemptions), stronger safeguards, improved transparency, and tailored approaches for rural areas and self-management to better protect participants and strengthen scheme integrity.

4 March 2026

MS Australia’s submission to the NDIA raises significant concerns about the NDIS proposed new framework planning rules. MS Australia calls for delayed implementation to allow for genuine co‑design, better staff training, participant review of draft support need assessments, removal of informal supports in NDIS plan budgeting, and clear, accessible guidance.
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Cladribine submission to PBAC – February 2018