Submission to the NDIS Review on the What we have heard report
31 July 2023
NDIS
MS Australia's submission to the NDIS Review draws on input from our Member Organisation and details issues faced by people with MS, recommending staff training, improved communication, better access to supports, streamlined processes, and consistent decision-making. The submission emphasises the need for better funding, support coordination, and understanding of MS-specific needs to enhance the quality of life and independence for individuals with MS.
MS Australia is writing to the Pharmaceutical Benefits Advisory Committee (PBAC) in support of the request to include ocrelizumab (Ocrevus®) via subcutaneous (SC) delivery on the Pharmaceutical Benefits Scheme (PBS) for the treatment of people living with relapsing-remitting multiple sclerosis (RRMS).
MS Australia is writing to the Pharmaceutical Benefits Advisory Committee (PBAC) in support of the request to include ublituximab (Briumvi®) on the Pharmaceutical Benefits Scheme (PBS) for the treatment of people living with relapsing remitting multiple sclerosis (MS).Â
MS Australia’s 2025-26 Pre-Budget Submission advocates for strategic investments to support over 33,300 Australians living with MS. Key funding asks include $8M for a National MS Biobank, $300M for a Neurological Research Mission, and $550K for neurological data improvements; $6.5M to expand MS nursing services, a national strategy, and training programs; Improved NDIS pricing, workforce, assistive technology, and income support; and Increased funding for disability-specific aged care services.
MS Australia’s submission on the second round of NDIS Act amendments supports enhanced statutory duties for providers and key personnel, emphasising accountability and the need for guidance, training, and clarity. It endorses stronger penalties but urges proportionality and clear definitions. Anti-promotion orders, expanded banning categories, and data storage rules are welcomed with caveats. The recommendations focus on balancing safeguarding participants with practical provider considerations.
