MS Australia works closely with many community representative groups, to help spotlight issues of concern for people with multiple sclerosis (MS).
Our collaborations, partnerships and alliances with other peak bodies and organisations with whom we have common interests and shared concerns, helps to advance the interests of people affected by MS, in a way that MS Australia could not achieve on its own. Together we work on short, shared advocacy issues and campaigns and often, more formal, long term arrangements.
MS Australia is a member of the following alliances:
The Neurological Alliance Australia (NAA) comprises 12 not‐for‐profit peak organisations, representing adults and children living with progressive neurological or muscular diseases. The NAA promotes both improved quality of life for people with these conditions and funding to support research. The Alliance makes submissions, issues joint statements, and holds events, to advocate and lobby on matters of mutual interest to its members.
To read position statements, a news item and joint MS Australia/NAA submissions and papers, please click here.
Australian Patient Advocacy Alliance (APAA)
The APAA is a group of consumer health groups who represent over 15 million Australians living with chronic conditions, with an aim to pursue policy change. APAA advocates for systemic solutions to improve access, break down barriers and drive innovation that improves health outcomes. The Alliance’s shared ambition is to improve the health and wellbeing of all Australians through a health system that puts the consumer at its heart; one that draws on the experience of Australians living with health conditions and embeds consumers at every step of the policy making process.
The Accessible Product Design Alliance is a group of not-for-profit consumer health organisations that represent more than 5 million Australians with chronic conditions, for whom, inaccessible products and packaging have a significant impact. The Alliance, led by Arthritis Australia, advocates to government and industry to both improve access to easy-to-use products and packaging and increase research. The Alliance’s vision is accessible product and packaging design for consumers, regardless of their level of ability. Since forming and to advance its mission, the Accessible Product Design Alliance has worked on several initiatives, workshops and submissions.
The Assistive Technology for All (ATFA) Alliance comprises peak bodies and consumer representatives spanning the health, ageing and disability sectors. ATFA members have joined forces to advocate for a national assistive technology program, for people with disability excluded from the National Disability Insurance Scheme. Alliance activities include a dedicated campaign website and public callouts for case studies, feedback and support for ATFA’s advocacy goals.
To read joint MS Australia/ATFA submissions, please click here.
The Chronic Illness Alliance aims to build a better focus in health policy and health services for people with chronic illnesses. The Alliance educates, is involved in research projects (focusing on improved management and effective support programs) and facilitates professional development for health service providers (about effective day to day management of chronic illness), to assist people living with chronic illnesses. The Chronic Illness Alliance also facilitates educational forums and workshops about issues which impact wellbeing (such as peer support training). Furthermore, it collects and disseminates information about community services and support programs. At its peak, the Alliance had 55 member organisations. Its important work continues on a voluntary basis.
Ending Loneliness Together is a network of organisations who have come together to address the growing problem of loneliness in Australia. The goal of Ending Loneliness Together is to bring people, community, and government together to make connection and belonging a priority, whilst creating effective solutions to combat chronic loneliness and spotlight this critical social, health and economic problem.
Stem Cells Australia informs and educates patients, healthcare professionals, media, policy makers and the public about how stem cells are used in medicine now, and what they may offer in the future. Stem Cells Australia provides information and resources about stem cell research, clinical trials and where to go to find out more. A partnership between researchers, patient advocates and community groups, Stem Cells Australia is supported by the University of Melbourne.