Submissions

MS Australia is dedicated to influencing policy and driving change to improve the lives of people living with multiple sclerosis (MS). Through our advocacy, we represent the voices of those affected by MS, engaging with government bodies, healthcare providers, and the broader community.

We focus on ensuring access to quality care, supporting research for better treatments, and securing a more inclusive society. Our submissions address critical issues, offering evidence-based recommendations to shape policies that impact the MS community.

Explore our latest submissions to see how we're working to create a better future for everyone touched by MS.

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Category
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Year

MS Australia Submissions

17 November 2025

MS Australia’s submission to the Department of Infrastructure, Transport, Regional Development, Communications and the Arts advocates for the Transport Standards and guidelines to require regular disability awareness and inclusion training for all public transport staff; procedures for handling equipment disruptions; procedures for crowd management to assist people with disability when boarding and department public transport; and amending Part 15 to prohibit locking accessible toilets, ensuring they remain available for people with disability, including those living with MS.
Disability, Travel and Transport

9 November 2025

MS Australia’s submission to the NDIS Evidence Advisory Committee advocates for evidence-based supports to improve outcomes for people with MS. Key recommendations include ensuring access to exercise physiology (2–4 sessions weekly) and smart home appliances to maintain independence and quality of life. It calls for training for NDIS planners, clear guidelines, and preventing arbitrary removal of supports. Emphasis is placed on long-term economic benefits, participant wellbeing, and flexibility in planning and decision-making.
Disability, NDIS

22 October 2025

MS Australia’s submission, informed by LEEP member experiences, recommends updating the Disability Discrimination Act to clearly define disability and discrimination, explicitly include conditions like MS, and introduce a positive duty requiring organisations to proactively prevent discrimination. It also calls for improved workplace adjustment processes and a national education campaign to raise disability awareness.
Disability, Royal Commission

25 August 2025

MS Australia’s submission to the Inquiry into Aged Care Service Delivery highlights the urgent need for equity in aged care for older people with disability, including MS. It calls for immediate release of 20,000 home care packages, alignment of aged care funding with NDIS levels, and inclusion of disability-specific supports in the Support at Home program.

5 May 2025

MS Australia is writing to the Pharmaceutical Benefits Advisory Committee (PBAC) in support of the request to include ocrelizumab (Ocrevus®) via subcutaneous (SC) delivery on the Pharmaceutical Benefits Scheme (PBS) for the treatment of people living with relapsing-remitting multiple sclerosis (RRMS).
Medication Subsidy (PBAC)

1 April 2025

MS Australia has undertaken an analysis of the 2025-26 Budget to explore how it will impact the lives of people living with MS.
Budget, Aged Care

11 March 2025

MS Australia is writing to the Pharmaceutical Benefits Advisory Committee (PBAC) in support of the request to include ublituximab (Briumvi®) on the Pharmaceutical Benefits Scheme (PBS) for the treatment of people living with relapsing remitting multiple sclerosis (MS). 
Medication Subsidy (PBAC)

6 February 2025

MS Australia’s 2025-26 Pre-Budget Submission advocates for strategic investments to support over 33,300 Australians living with MS. Key funding asks include $8M for a National MS Biobank, $300M for a Neurological Research Mission, and $550K for neurological data improvements; $6.5M to expand MS nursing services, a national strategy, and training programs; Improved NDIS pricing, workforce, assistive technology, and income support; and Increased funding for disability-specific aged care services.
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Submissions