Submissions

MS Australia is dedicated to influencing policy and driving change to improve the lives of people living with multiple sclerosis (MS). Through our advocacy, we represent the voices of those affected by MS, engaging with government bodies, healthcare providers, and the broader community.

We focus on ensuring access to quality care, supporting research for better treatments, and securing a more inclusive society. Our submissions address critical issues, offering evidence-based recommendations to shape policies that impact the MS community.

Explore our latest submissions to see how we're working to create a better future for everyone touched by MS.

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Category
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Year

MS Australia Submissions

5 February 2026

MS Australia’s submission to the 2025–26 NDIS Annual Pricing Review highlights that current NDIS pricing is inconsistent, inflexible and fails to reflect the real cost of supporting people with progressive neurological conditions. The submission recommends differentiated and sustainable pricing, removal of quarterly funding periods, increased prices for therapy, support coordination, plan management and registered providers, and transferring pricing responsibility to IHACPA to ensure transparent, evidence‑based and independent pricing across the sector.

2 February 2026

MS Australia’s 2026–27 Pre‑Budget Submission seeks investment to address rising MS prevalence and growing economic impacts. It calls for funding to expand MS research and data infrastructure, increase access to MS Nurses, improve NDIS pricing and planning, strengthen the disability and aged care workforce, and ensure equitable supports for older people with disability. The submission outlines four priority areas: research, nursing, disability reform, and aged care system improvements.

30 January 2026

MS Australia’s submission to the inquiry highlights systemic issues in NDIS administration, including inconsistent claims management, inadequate pricing, delayed payments, and disproportionate compliance burdens on registered providers. It calls for clearer pre‑payment rules, risk‑based compliance, improved performance reporting, and a tiered regulatory model. The submission urges the Department to recognise gaps between policy and practice, strengthen two‑way consultation, and address sudden operational changes impacting people with MS and service providers.

17 November 2025

MS Australia’s submission to the Department of Infrastructure, Transport, Regional Development, Communications and the Arts advocates for the Transport Standards and guidelines to require regular disability awareness and inclusion training for all public transport staff; procedures for handling equipment disruptions; procedures for crowd management to assist people with disability when boarding and department public transport; and amending Part 15 to prohibit locking accessible toilets, ensuring they remain available for people with disability, including those living with MS.
Disability, Travel and Transport

9 November 2025

MS Australia’s submission to the NDIS Evidence Advisory Committee advocates for evidence-based supports to improve outcomes for people with MS. Key recommendations include ensuring access to exercise physiology (2–4 sessions weekly) and smart home appliances to maintain independence and quality of life. It calls for training for NDIS planners, clear guidelines, and preventing arbitrary removal of supports. Emphasis is placed on long-term economic benefits, participant wellbeing, and flexibility in planning and decision-making.
Disability, NDIS

22 October 2025

MS Australia’s submission, informed by LEEP member experiences, recommends updating the Disability Discrimination Act to clearly define disability and discrimination, explicitly include conditions like MS, and introduce a positive duty requiring organisations to proactively prevent discrimination. It also calls for improved workplace adjustment processes and a national education campaign to raise disability awareness.
Disability, Royal Commission

25 August 2025

MS Australia’s submission to the Inquiry into Aged Care Service Delivery highlights the urgent need for equity in aged care for older people with disability, including MS. It calls for immediate release of 20,000 home care packages, alignment of aged care funding with NDIS levels, and inclusion of disability-specific supports in the Support at Home program.

5 May 2025

MS Australia is writing to the Pharmaceutical Benefits Advisory Committee (PBAC) in support of the request to include ocrelizumab (Ocrevus®) via subcutaneous (SC) delivery on the Pharmaceutical Benefits Scheme (PBS) for the treatment of people living with relapsing-remitting multiple sclerosis (RRMS).
Medication Subsidy (PBAC)
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Submissions