Around 80 per cent of medical information provided by doctors is forgotten straight away! Can you believe that? When you’re newly diagnosed with MS, it’s a difficult time and there is so much to learn and understand about your diagnosis, treatment options and the impact MS will have on your lifestyle.
That’s why Medicine X, MS Australia and MS Research Australia have partnered to develop an innovative free story-telling resource called MS Xplained. MS Xplained has been developed to help diagnosed Australians (and their family and friends) to fully understand what’s going on, in the privacy of their own home, where they have more time and space to digest.
MS Xplained follows Sommer’s real-life story following her sudden diagnosis of MS. The resource explains what MS is, symptoms, treatment options and how MS might affect your life, among other things.
Sommer is the real-life inspiration for the main character in the MS Xplained story. She thought nothing of it when she first started getting headaches but then started getting tingling ‘pins and needles’ in her legs and sudden blurry vision, which led to her diagnosis of MS. She has worked with her neurologist who helped her try different treatments until she found one that works for her.
“It’s not always easy accepting help,” Sommer says. “But letting others help you will actually let you be more independent and active. Your symptoms will come and go, and change, but so can your treatments! Talk to your care team so you can work with them to help you live your best life.”
MS Xplained has been developed to translate complicated ‘doctor speak’ into interesting and engaging language so everyone can have access to medical information they can understand. The resource has been developed in collaboration with medical experts, relevant medical bodies and medical institutions, by Medicine X, to create reliable and accurate information you can depend on.
Cathryn Corcoran CEO at Medicine X, says being diagnosed with MS can be overwhelming and terrifying. “MS Xplained provides information in a way that is easy to understand and digest for both those diagnosed and their family and friends.
“It’s often difficult to know where to turn when you’re first diagnosed. I hope this type of resource can really make a difference to help people with MS understand a diagnosis doesn’t mean you can’t go on to live a fulfilling and rewarding life.”