To everyone in the MS community.
For people with MS on the NDIS, disability supports are not discretionary. They are essential. Particularly given the lifelong, progressive and often unpredictable nature of MS.
Recent announcements have outlined a series of reforms aimed at slowing NDIS growth, including the introduction of new planning and assessment frameworks, and measures that will significantly reshape how supports are funded, delivered and managed.
We welcome a number of these changes focused on quality care, including registration requirements for direct care services; and we support a scheme that is sustainable for those with higher support needs, as the scheme was designed. We understand the Government’s need to manage the affordability of the scheme.
There are, however, some changes that, without further detail, may be of concern, including reductions in funding for social and community participation, fewer support coordinators and plan managers; as well as new standardised functional assessments, which may have real implications for people living with MS and other neurological conditions who rely on the scheme.
MS Australia remains steadfast in our commitment to advocate for a better NDIS.
One that is fair, sustainable, and that continues to deliver certainty, dignity and access to vital supports for people living with MS.
As the Government moves forward with legislation, consultation and implementation, we will continue to engage directly with decision‑makers to ensure the lived realities of people with MS are understood and reflected; including the need for ongoing access to appropriate supports and services.
We will continue to stand alongside the MS community, amplify your voices, and push for an NDIS that works for people living with MS and other neurological conditions, now and into the future.
