MS Australia's response to the NDIS Draft List of Supports draws on input from members of our LEEP and Member Organisations and emphasises that the list inadequately covers essential supports for people with MS, including air conditioning, assistive technology, and mental health services. It notes important exclusions like smartwatches and home repairs, urging a case-by-case approach and calls for better training for NDIS planners and a focus on evidence-based disability supports
MS Australia’s submission on the Draft Revised Whole Journey Guide acknowledges the Guide’s intent and potential value. However, drawing on feedback from our LEEP, we recommend that the Guide be substantially revised to improve clarity, usability and accessibility, including through a shorter structure, a plain-language companion guide, expanded air travel content, and a stronger focus on practical accessibility measures.
MS Australia submission supports strengthening the NDIS but warns the Bill risks reducing rights and flexibility for people with MS. It highlights concerns with stricter eligibility, assessments, informal support assumptions, pricing changes, and decision-making powers. The submission calls for stronger safeguards, consultation, workforce training, and human rights compliance to ensure reforms are person‑centred, evidence‑based, and responsive to complex, fluctuating conditions like MS.
MS Australia’s submission to the Inquiry into the Integrity of the NDIS highlights widespread risks of fraud and non-compliance, particularly among unregistered providers, leading to harm, reduced supports, and loss of trust for participants. It recommends compulsory provider and worker registration (with limited exemptions), stronger safeguards, improved transparency, and tailored approaches for rural areas and self-management to better protect participants and strengthen scheme integrity.
MS Australia’s submission to the NDIA raises significant concerns about the NDIS proposed new framework planning rules. MS Australia calls for delayed implementation to allow for genuine co‑design, better staff training, participant review of draft support need assessments, removal of informal supports in NDIS plan budgeting, and clear, accessible guidance.
MS Australia’s submission to the 2025–26 NDIS Annual Pricing Review highlights that current NDIS pricing is inconsistent, inflexible and fails to reflect the real cost of supporting people with progressive neurological conditions. The submission recommends differentiated and sustainable pricing, removal of quarterly funding periods, increased prices for therapy, support coordination, plan management and registered providers, and transferring pricing responsibility to IHACPA to ensure transparent, evidence‑based and independent pricing across the sector.
