MS Australia's submission on the NDIS Amendment Bill 2024 draws on input from members of our LEEP and Member Organisations and calls for mandatory co-design in legislative changes, improved co-design approaches by the NDIA, an NDIS Review Implementation Advisory Committee, and clearer delegated legislation. It also recommends revising NDIS support definitions and including a mechanism for internal review of needs assessments to enhance support for people living with MS.
MS Australia is writing to the Pharmaceutical Benefits Advisory Committee (PBAC) in support of the request to include ocrelizumab (Ocrevus®) via subcutaneous (SC) delivery on the Pharmaceutical Benefits Scheme (PBS) for the treatment of people living with relapsing-remitting multiple sclerosis (RRMS).
MS Australia is writing to the Pharmaceutical Benefits Advisory Committee (PBAC) in support of the request to include ublituximab (Briumvi®) on the Pharmaceutical Benefits Scheme (PBS) for the treatment of people living with relapsing remitting multiple sclerosis (MS).Â
MS Australia’s 2025-26 Pre-Budget Submission advocates for strategic investments to support over 33,300 Australians living with MS. Key funding asks include $8M for a National MS Biobank, $300M for a Neurological Research Mission, and $550K for neurological data improvements; $6.5M to expand MS nursing services, a national strategy, and training programs; Improved NDIS pricing, workforce, assistive technology, and income support; and Increased funding for disability-specific aged care services.
MS Australia’s submission on the second round of NDIS Act amendments supports enhanced statutory duties for providers and key personnel, emphasising accountability and the need for guidance, training, and clarity. It endorses stronger penalties but urges proportionality and clear definitions. Anti-promotion orders, expanded banning categories, and data storage rules are welcomed with caveats. The recommendations focus on balancing safeguarding participants with practical provider considerations.
