NDIS participant experience in rural, regional and remote Australia
8 March 2024
NDIS,Rural and Remote
MS Australia's submission to the Joint Standing Committee on the National Disability Insurance Scheme draws on input from members of our LEEP and highlights the challenges faced by NDIS participants in rural, regional, and remote Australia. It emphasises the need for systemic policy changes, improved planning and assessment processes, enhanced resources and training for health professionals, and increased awareness and understanding among NDIA staff about progressive neurological conditions like MS. The submission includes case studies and specific recommendations to improve the NDIS experience for people living with MS.
MS Australia’s submission to the Inquiry into Aged Care Service Delivery highlights the urgent need for equity in aged care for older people with disability, including MS. It calls for immediate release of 20,000 home care packages, alignment of aged care funding with NDIS levels, and inclusion of disability-specific supports in the Support at Home program.
MS Australia is writing to the Pharmaceutical Benefits Advisory Committee (PBAC) in support of the request to include ocrelizumab (Ocrevus®) via subcutaneous (SC) delivery on the Pharmaceutical Benefits Scheme (PBS) for the treatment of people living with relapsing-remitting multiple sclerosis (RRMS).
MS Australia is writing to the Pharmaceutical Benefits Advisory Committee (PBAC) in support of the request to include ublituximab (Briumvi®) on the Pharmaceutical Benefits Scheme (PBS) for the treatment of people living with relapsing remitting multiple sclerosis (MS).Â
MS Australia’s 2025-26 Pre-Budget Submission advocates for strategic investments to support over 33,300 Australians living with MS. Key funding asks include $8M for a National MS Biobank, $300M for a Neurological Research Mission, and $550K for neurological data improvements; $6.5M to expand MS nursing services, a national strategy, and training programs; Improved NDIS pricing, workforce, assistive technology, and income support; and Increased funding for disability-specific aged care services.
