Secondary use of My Health Record Data

16 November 2017

Health
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MS Australia Submissions

5 February 2026

MS Australia’s submission to the 2025–26 NDIS Annual Pricing Review highlights that current NDIS pricing is inconsistent, inflexible and fails to reflect the real cost of supporting people with progressive neurological conditions. The submission recommends differentiated and sustainable pricing, removal of quarterly funding periods, increased prices for therapy, support coordination, plan management and registered providers, and transferring pricing responsibility to IHACPA to ensure transparent, evidence‑based and independent pricing across the sector.

2 February 2026

MS Australia’s 2026–27 Pre‑Budget Submission seeks investment to address rising MS prevalence and growing economic impacts. It calls for funding to expand MS research and data infrastructure, increase access to MS Nurses, improve NDIS pricing and planning, strengthen the disability and aged care workforce, and ensure equitable supports for older people with disability. The submission outlines four priority areas: research, nursing, disability reform, and aged care system improvements.

30 January 2026

MS Australia’s submission to the inquiry highlights systemic issues in NDIS administration, including inconsistent claims management, inadequate pricing, delayed payments, and disproportionate compliance burdens on registered providers. It calls for clearer pre‑payment rules, risk‑based compliance, improved performance reporting, and a tiered regulatory model. The submission urges the Department to recognise gaps between policy and practice, strengthen two‑way consultation, and address sudden operational changes impacting people with MS and service providers.

17 November 2025

MS Australia’s submission to the Department of Infrastructure, Transport, Regional Development, Communications and the Arts advocates for the Transport Standards and guidelines to require regular disability awareness and inclusion training for all public transport staff; procedures for handling equipment disruptions; procedures for crowd management to assist people with disability when boarding and department public transport; and amending Part 15 to prohibit locking accessible toilets, ensuring they remain available for people with disability, including those living with MS.
Disability, Travel and Transport

9 November 2025

MS Australia’s submission to the NDIS Evidence Advisory Committee advocates for evidence-based supports to improve outcomes for people with MS. Key recommendations include ensuring access to exercise physiology (2–4 sessions weekly) and smart home appliances to maintain independence and quality of life. It calls for training for NDIS planners, clear guidelines, and preventing arbitrary removal of supports. Emphasis is placed on long-term economic benefits, participant wellbeing, and flexibility in planning and decision-making.
Disability, NDIS
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Secondary use of My Health Record Data