Does The National Disability Insurance Scheme Work Well for People with MS?

Professor Bruce Taylor

University of Tasmania, TAS

February 2023

specialisation: Social And Applied Research

focus area: Better treatments

funding type: Project

project type: Investigator Led Research

Summary

Professor Bruce Taylor and his team aim to evaluate the impact of the National Disability Insurance Scheme (NDIS) among Australians living with MS. They will do this in five projects:

  1. They will determine how many people with MS have NDIS plans and if there are common characteristics among the people who have plans (e.g. if it is more common for men to have a plan compared to women).
  2. Among those who have a plan, they will also explore what the average monetary value of an NDIS plan is and if there are common characteristics among those with higher value plans (e.g. if it is more common for people with more severe disability to have a higher value plan).
  3. Among those with an NDIS plan, the team will evaluate the impact of becoming a NDIS participant on quality of life and workforce participation.
  4. They will explore the experience of applying for and administering an NDIS plan for people living with MS in depth and identify barriers and facilitators to access.
  5. The team will explore the experience of preparing or contributing to an NDIS application among local area coordinators and healthcare providers (e.g. GPs, neurologists, MS nurses) to identify strengths and weaknesses in the application process.
  6. Professor Taylor and his team will then share what they have learnt through a free online course about accessing the NDIS for people living with MS.

Progress

Professor Taylor and his team have made significant progress on this project. First, they have developed, tested and rolled out an NDIS satisfaction questionnaire to all participants in the Australian MS Longitudinal Study (AMSLS). The team expects around 1500 respondents and data analysis will commence in the first half of 2025. Second, they have commenced interviews with people with MS and their carers to understand how the NDIS has affected people’s lives. There are 25 full length interviews completed.

This data collection phase is still in progress. Early indications suggest that people with MS and their carers are very interested in talking about the NDIS and substantial responses have been received.

Once all data has been collected and analysed, the team will work towards the development of their NDIS online resources for people with MS.

Updated 31 March 2025 

lead investigator

total funding

$244,123

start year

2023

duration

3 years

STATUS

Current project

Stages of the research process

Fundamental laboratory Research

Laboratory research that investigates scientific theories behind the possible causes, disease progression, ways to diagnose and better treat MS.

Lab to clinic timeline

10+ years

Translational Research

Research that builds on fundamental scientific research to develop new therapies, medical procedures or diagnostics and advances it closer to the clinic.

Lab to clinic timeline

5+ years

Clinical Studies and Clinical Trials

Clinical research is the culmination of fundamental and translational research turning those research discoveries into treatments and interventions for people with MS.

Lab to clinic timeline

3+ years

Read More
Associate Professor Tomas Kalincik

Newsletter subscription

  • This field is for validation purposes and should be left unchanged.

Does The National Disability Insurance Scheme Work Well for People with MS?