Annual Report

2020-2021

Introduction

About MS Australia

MS Australia is the national peak body for people affected by MS. We work with the MS community to fund and coordinate MS research, advocate on behalf of people living with MS and drive awareness and education as part of the worldwide effort to solve MS. We work closely with our four state and territory MS Member Organisations that provide services, programs, and support to the MS community nationwide.

About MS

0 %
of people with MS use a disease modifying therapy (DMT), an increase of 40% since 2010
More than
0
Australians live with MS
MS affects more
young adults
than any other acquired chronic neurological disease
Nearly 3 million people live with MS worldwide
3 out of 4 Australians diagnosed with MS are women
Average age of diagnosis is between
0

-

0
years old
$ 0 B
is the estimated cost
of MS to the Australian community in 2017
1-2
Australians are
diagnosed with MS
every day

MS Australia needed to evolve to be as successful in the future as it has been in the past.

Associate Professor Des Graham

Associate Professor Desmond Graham

President

Despite the challenges the pandemic brought, this past year has been a momentous time in MS Australia’s history. Australians living with MS are now represented by a single, efficient national body that speaks with one voice. Every dollar we spend supports the current and future needs of Australians living with and affected by MS and our relentless pursuit of a cure. MS Australia’s key focus is providing the best outcomes for people with MS and overseeing our research program to better treat, prevent and ultimately find a cure for MS.

Rohan Greenland

CEO

COVID-19, of course, has presented significant challenges for MS Australia and the broader MS community. However, we’ve been able to pivot to ensure research gets funded, submissions are made, and our voices are heard. The MS Australia staff and team leaders deserve praise for their ability to make things happen, even as our physical offices opened and closed, events and meetings were postponed, and new, online solutions were found to ensure we were able to work together while working apart.

COVID-19 Response

COVID-19 created many challenges for both MS Australia and the wider MS community.

MS Australia rose to the challenge, adapting ways of working to support the MS and research communities. Researchers received extensions and financial support to continue their work, and funding for additional research registries enabled investigation of the impact of COVID-19 on people living with MS. MS Australia also worked hard to keep the MS community informed with the latest COVID-19 information and medical advice.

Research at a glance

26 new research grants awarded
$ 0 K
funding provided to researchers most affected by COVID-19
0
investigator-led projects currently funded
2
modifiable lifestyle factor guides launched, one for people living with MS and one for healthcare professionals
Over $3M allocated in the 2021 grants round, the largest-ever round
A 5-Year
strategic partnership with the St Vincent's Curran Foundation launched to help establish a Centre of Excellence in Cellular Therapy at St Vincent's Hospital in Sydney
1st
ever treatment for secondary progressive MS added to the PBS
Over
$ 0 K
awarded to 12 new incubator grants, providing seed funding to new, innovative research ideas

Advocacy at a glance

0
submissions to government and departmental inquiries and consultations
0
submissions
about the NDIS
2
submissions to the PBAC to support the listing of MS medications on the PBS
Met with
Deputy CEO OF NDIA
to discuss issues of concern regarding the NDIS
3
new DMTs for MS listed on the PBS
0
volunteer National Advocates work to advance MS advocacy efforts
Member of 7
alliances
0
Parliamentary Friends of MS group members

Fundraising at a glance

The May 50K won the
FIA 2021 Awards for Excellence in Fundraising Impact Through Events
Over $5.2M
raised for MS research by The May 50K in 2021
More than
$1M
received from donations and fundraising
$14M raised in Australia since
The May 50K
launched in 2019
$ 0 M
raised globally since
The May 50K launched in 2019
0
people with MS participated in
The May 50K 2021
Over $1M
donated by Trusts and Foundations

Awareness & Education

0
research report
videos produced
0
engagements on social media
0
average circulations
Outstanding Achievement Award (OAA) from
The Australian Charity Awards
in 2020
0
people reached
on social media
0
total website visitors
0
Connecting with Family and Friends Animation
views
Over
0
Live Update views

Finance at a glance

Over
$7.6M
income from fundraising
Over
0 %
of expenditure spent on MS research
$ 0 K
funding lifeline for MS researchers impacted by COVID-19
A record $7.4M donation commitment from MSWA for MS research
$5.2M
raised for vital MS research by
The May 50K 2021
$ 0 M
raised globally since
The May 50K
launched in 2019
Over
0 %
of all revenue was received from our state and territory MS Member Organisations
Over $4.7M
received from our state and territory MS Member Organisations

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Annual Report 2020-2021