From our CEO

27 September 2023

The National Disability and Insurance Scheme (NDIS) stands as a remarkable initiative that has delivered life-changing benefits to many Australians living with disabilities.

Nevertheless, the Scheme is not without fault and too often a source of stress and anxiety for participants, underscoring the pressing need for its improvement.

Ahead of the announcement of the NDIS Review last year, we launched our advocacy campaign, ‘A Better NDIS for People Living With MS,’ calling for six essential reforms to ensure all people with MS are treated with dignity and fairness when engaging with the NDIS.

The campaign not only captured the attention of politicians and decision-makers within the NDIS but also secured prominent coverage from the national media. Above all, it received tremendous support from the MS community.

As the NDIS Review neared its conclusion, we rallied Australians to sign a Letter of Support, backing the NDIS Review Panel co-chairs to make the right decision to implement the reforms called for by the MS community.

The response to this call to action was incredibly heartening. More than 2,100 passionate people joined together to advocate for a better NDIS for people with MS by adding their names to the letter.

We are delighted to share that on 14 August, we successfully submitted the Letter of Support to the NDIS Review. However, our journey is far from over.

We eagerly await the NDIS Review co-chairs’ recommendations and the subsequent response from the Government. These outcomes will shape our next steps towards ensuring positive change.

In the meantime, we want to express our sincere gratitude to our state and territory MS Member Organisations and the members of the Neurological Alliance Australia for endorsing and amplifying the impact of this campaign.

Furthermore, we extend our heartfelt thanks to everyone who participated in the campaign for their enthusiasm and commitment to creating a better future for people living with MS. Your support truly makes a difference.


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From our CEO